Effective Date: 19th April 2023

Our Website:

Our website runs on a hosted platform provided by EcoGeek S.L. While EgoGeek S.L. processes the personal data you supply to us, they do so on our instruction.  This privacy policy only describes what we, Social SciencEs in Endometriosis Network (SEEN), do with your data. 

Data collected by EcoGeek S.L. in pursuance of providing service to us, Social SciencEs in Endometriosis Network:

In providing a Website hosting service to us, EcoGeek automatically collects technical information for which they are the controller using Cookies and similar technology. This includes information such as your IP address, your device and browser type, the web page you visited before coming to our sites.  EcoGeek S.L also gathers information about your interactions with our Website and this is done using an anonymous, aggregated or pseudonymized form which does not focus on you individually. 

Cookies:

This Cookie Policy describes how SEEN uses cookies and similar technologies to provide, customize, evaluate, improve, promote and protect our Services. If you have any comments or questions about this Cookie Policy, feel free to contact us at socialendonet@gmail.com.  

Cookies. Cookies are small pieces of text sent to your browser when you visit a site. They serve a variety of functions, like enabling us to remember certain information you provide to us as you navigate between pages on the Services. We use cookies on the website for the following purposes:

• Authentication, Customization, Security and Other Functional Cookies. Cookies help us verify your Account and device and determine when you’re logged in, so we can make it easier for you to access the Services and provide the appropriate experiences and features. We also use cookies to help prevent fraudulent use of login credentials and to remember choices you’ve made on the Services, such as your language preference. 
   
• Performance And Analytics. Cookies help us analyze how the Services are being accessed and used, and enable us to track the performance of the Services. For example, we use cookies to determine if you viewed a page or opened an email. This helps us provide you with information that you find interesting.
   
• Third Parties. Third Party Services may use cookies to help you sign into their services from our Services. Any such third party cookie usage is governed by the policy of the third party placing the cookie.
   
• Our third party partners may set cookies on your device or browser to gather information about your activities on the Services and other sites you visit, in order to provide you with information regarding SEEN services. For example, if you visit the SEEN website and you also use a social media platform, you may see links to the SEEN website in your social media newsfeed or timeline.
   
• Opting Out. You can set your browser to not accept cookies, but this may limit your ability to use our website. We currently don’t respond to DNT:1 signals from browsers visiting our Services.

Third Party Tags. We use and manage third party tags on the SEEN website. Third party tags may take the form of pixels or tracking snippets. We use pixels to learn how you interact with our site pages and emails, and this information helps us and our ad partners provide you with a more tailored experience. We use tracking snippets to capture data from your browser, make requests to a third party partner or set cookies on your device to store data. We use Google Tag Manager to manage our third party tag usage. This may cause other tags to be activated which may, for their part, collect data and set cookies under certain circumstances. Google Tag Manager does not store this data.

We may update this Cookie Policy from time to time. When we make changes, we’ll update the “Effective Date” at the top of the Cookie Policy and post it on our sites. We encourage you to check back periodically to review this Cookie Policy for any changes since your last visit.

Your Personal Data:

What we need

Social SciencEs in Endometriosis Network will be the ‘Controller’ of the personal data you provide to us. We collect basic personal data about you including your name and email

Why do we collect your data?

We need your basic personal data in order to provide you with information about SEEN events and other related information. We will not collect any personal data from you that we do not need in order to provide and oversee this service to you.

What we do with your data

All the personal data we hold is processed by our staff and volunteers in the UK however for the purposes of IT hosting and maintenance this information is located on servers within the European Union.

No third parties have access to your personal data unless the law allows them to do so.

We have an Information Security regime in place to oversee the effective and secure processing of your personal data. This is provided by EcoGeek S.L as part of their service to us.

How long do we keep your data?

We keep your data on file until you inform us to remove it.  We may undertake from time to time a review of members who have not accessed the service in a period of time, we may then contact these members to see if they wish to remain SEEN members.

What we would also like to do with your data?

We would like to use your name and email address to inform you of possible future events or other SEEN plans.

What are your rights?

If at any point you believe the information we process on you is incorrect you can request to see this information and have it corrected or deleted. If you wish to raise a complaint on how we have handled your personal data, you can contact us at socialendonet@gmail.com and we will investigate the matter. 

If you are not satisfied with our response or believe we are not processing your personal data in accordance with the law you can complain to the Information Commissioner’s Office (ICO).

Comments:

When visitors leave comments on the site we collect the data shown in the comments form, and also the visitor’s IP address and browser user agent string to help spam detection.

An anonymized string created from your email address (also called a hash) may be provided to the Gravatar service to see if you are using it. The Gravatar service privacy policy is available here: https://automattic.com/privacy/. After approval of your comment, your profile picture is visible to the public in the context of your comment.